Operation #3

20 May, 2009. Exactly one month since Operation #1, the bilateral lumpectomy.

Consent for the bilateral mastectomy signed, operation booked and they were about to come off.

My boobs had been the centre of my world for several months now and the morning of the ‘big operation’ was no different. There wasn’t a lot of talking though, just a very uneasy silence. I wasn’t sad, worried, upset – just anxious. My final shower with my boobs was quite surreal.

Dr D was planning to take a couple of lymph nodes just to check the cancer hadn’t become invasive. Without going into too much detail – the process of preparation for a Sentinel Node Biopsy was one of the most unpleasant experiences I’ve ever endured. Four syringes of dye injected around and into the nipple. Yes, I swore.

After hours of waiting for the dye to reach the lymph nodes I had some x-rays done. Then another long wait for the surgery to begin.


A volunteer from Cancer Council Queensland came to visit – bringing with her a heap of information for sufferers and those close to them. She also gave me a pink satin cushion – shaped like one of those neck pillows for travel, assuring me I’d find it very useful for under my arm when I woke up. I had visits from a couple of nurses I knew personally – Kay a family friend from way back, and Wendy who’s married to the boss of Channel Ten here on the Coast. In a sign of how frequently I’d been in recently, I was also on a first-name basis with the admissions nurse Dot!

I was off to theatre mid-afternoon. More familiar faces with a couple of the anaesthetic nurses from my previous surgeries.

Dr D came for that ‘last minute chat’, only this time he had a camera in hand, along with a big purple texta. As he took photos of my boobs I smiled “no need to pose Kate, I’m not getting your face” he laughed. Then with that purple pen he marked out where my boobs sat. Another one of those very strange life experiences.

I was starting to get a little groggy as I climbed from the trolley onto the table, but pulled the gown down for ‘one last look’, much to the amusement of all the medical professionals who now had my life (and boobs!), in their hands.

Reality

Reality was exactly as Dr D had told me the morning after my second operation, however Paul was yet to hear it for himself. There was a total of four ‘spots’ of DCIS. It was ‘multi-focal’.

My immediate question to Dr D was “How can we be sure there’s no more?” “There’s no guarantee” was his simple response.

I’d had time to think about plenty of other questions as well, including;

Chance of recurrence?
Radiotherapy V Mastectomy?
Chance of survival?
Impact on fertility?
What about my left breast?

While I treated this as any other interview (albeit a whole lot more personal), I could see Paul grappling with the magnitude of the situation. Before my eyes he was melting into information overload. At the core of it was this – my breasts appeared to be perfectly healthy why would I consider chopping one/both of them off? Fact of the matter was – at least one of them was diseased. I had no real attachment anymore. My gut feel was it had to go, and if subjecting my body to the more radical option of surgery in order to rid myself of cancer and protect from it in the future – Dr D may as well take both.

Dr D gave me time, said another week wasn’t going to alter the outcome. That period of grace gave me time to try and sift through all the pros & cons – but ultimately, the decision was mine.

I set about speaking to all Doctors involved in my health care, including the Gynaecologist looking after the baby-making efforts. Her words were harsh but very clear “Cancer can kill, and there can’t be a baby if you’re not here.” Point taken.

My family GP was initially strongly against the surgical option saying the radiotherapy offered now can knock out the nasty cells. The footnote was “for now”. I’m sorry, but a band-aid solution was not enough.

I really felt that the radiotherapy was only a ‘short-term’ fix and there was the possibility I may have to face this again at some point in my future. Even so – I went to see a Radiation Oncologist. He explained that if the cancer returned it wouldn’t be possible to use radiation on the same area again, so mastectomy is therefore the only option. He is highly respected, but did little to change my mind. In fact he told me that the radical surgery was “a bit like taking a sledge-hammer to hit a nail.” Well, excuse me! If there’s a sledge-hammer available to smash this so there’s next to no chance it will get me again, then I’m going to grab it with both hands.

This phrase helped seal the deal. I’m 31. I would like to get to his age thank you very much. If surgery can give me the better odds, then I’ll do it.

 

Getting ‘plastered’

I was well aware of the seriousness of the second operation – but a sense of humour certainly helps.

My surgery was booked for late afternoon, so I had plenty of time to kill.

Given the fact I had to fast from 10am, I decided to rally the troops (family, friends, current/former workmates etc.) and have a nice big brekky at a local restaurant. Not only did it mean I went into hospital very well nourished, but I had some good quality ‘laugh’ time with them – while it didn’t hurt to laugh!

They all thought I was completely bonkers by booking a session to be ‘cast’. Yes – here’s the proof.

My dear Mum walked in to find me clad only in my underwear, with two bits of glad wrap over my nipples (to protect the still-stitched scars from the first operation).

My simple reasoning was that as Dr D worked to remove the cancer from my right breast that afternoon, I knew my ‘bust’ would never look the same again..


Around 20 minutes later the plaster had dried, and my real boobs were assigned to history.

We’ve picked up some changes…

Three days after my initial surgery, was the follow-up consultation with Dr D. We weren’t expecting anything more serious from the pathology, so there was no obvious reason to be dreading what he might say, however my beautiful little dog signalled I needed to be prepared. As I got ready for the appointment she hopped up on my lap and ever so gently rested her head on my right breast. It was barely touching, but I wondered if her uncharacteristically sad and sympathetic eyes were a warning.

There was no “I’m sorry Kate – you’ve got cancer.” It was simply “we’ve picked up some changes.”

B's 1st diagnosis

Those changes were DCIS, in the margins around the bigger lump in my right breast. As Paul tried desperately to take it all in, I went into ‘work mode’. The poor specialist was hit with a barrage of questions – “What do I need to know, what has to happen, who do I need to talk to, where do I need to go?”

Dr D asked repeatedly if I was okay, and commented that I was “very calm, and handling it very well considering.” He also asked how I felt. “Lucky” was the over-riding emotion and my immediate response. How incredibly lucky was I that he saw fit to remove the lumps in the first place. Had he not, those cells would not have been picked up at this early stage, but instead left to fester.

Operation #2 was booked for around a week later.

Gut Feeling


Put simply – it can be a life saver.

For well over 12 months I’d been back and forward to the GP – complaining of being tired. Not just the usual ‘had a full-on week at work, I’m zonked’ kind of exhaustion, but real fatigue.

Blood tests (plenty of them) returned nothing significant.

This may, or may not be related – the jury is still out. My gut feel, was that something wasn’t right.

In January – I noticed a lump in my left breast. Two Doctors later, I had a referral for an ultrasound. During examination the sonographer picked up a larger ‘mass’ in my right breast. My response was “it’s the wrong boob!” And – the lump I had felt (in my left breast) wasn’t showing up on the imaging, despite the fact the sonographer could feel it. He called in a Doctor and the Senior Radiologist. They could all feel it – but not find it with the machine.

Both GP’s I’d been to previously dismissed the ‘masses’ as nothing serious. “You’re only 31” they said. My point exactly. One refused point blank to send me for an FNA (Fine Needle Aspiration/biopsy) commenting “it’s just the imaging company trying to get the money for an unnecessary test.” I wanted it done, so went back to my family GP. It was done on the ‘big lump’ and came back as atypia – where cells are starting to become ‘abnormal’. A Mammogram and Core Biopsy followed. Although I wanted both lumps removed immediately, I was assured there was nothing to worry about. Another line I got was “the lumps don’t warrant the scarring.” Scarring! I hardly walk around with my boobs out! I resorted to begging, if for nothing more than peace of mind. No luck.

After vigorous discussion/debate with my husband Paul and others close to me, I stopped protesting at the lack of action on the boob front and agreed that yes ‘they’re the experts’ and surely if it was necessary, they’d recommend the lumps be removed. Still – that feeling in the pit of my stomach would not go away.

We’ve been trying to have a baby for years and had recently started another round of IVF treatment. I got two days into a cycle and called the IVF people to initiate the next phase. They knew of the lumps and asked if they’d been removed. When I said “no, no-one is overly concerned” I was met with a caring, but firm “there’ll be no IVF cycle Kate.” I was told the drug treatment involved could ‘feed’ any potential cancer.

That was it. I ended up in my Gynaecologist’s rooms for a breast examination. I told him I wanted the lumps out, no big deal “just get rid of them.” After telling me “there’s been a huge increase in the number of younger women undergoing unnecessary invasive procedures since the cases of Kylie Minogue and Jane McGrath” he decided to give in to my demand for a referral and sent me to his ‘mate’, who just happens to be one of the most highly-respected breast specialists in the region.

Dr D and his staff had done their homework on me before my initial consultation – films, pathology results etc.. I had an incredible sense of calm on entering their rooms and just knew I was in good hands. This was immediately obvious when he found that mysterious lump everyone could feel and no-one could actually find. On seeing that lump displayed on the screen I didn’t know whether to cry or scream. All I could say was “thank you.” He did a fine needle biopsy then and there. We agreed that should it come back as something even slightly suspicious, he’d get rid of it during the surgery to remove the bigger lump. The operation was booked for around a week later.